In a society where parenting roles can often be rigidly defined, some fathers in the Mathare informal settlement of Nairobi are challenging the traditional norms by fully embracing the role of caregivers for their children with cerebral palsy. This uplifting story shines a light on change, hope, and the power of love that challenges societal expectations.
A Transformative Journey
Kenneth Ongoro, along with many fathers in Mathare, is part of a groundbreaking movement that is changing perceptions around caregiving and disabilities. The moment when these fathers, historically uninvolved, take charge of their children’s well-being signifies a broader cultural shift. “It was tough at first,” admits Ongoro, reflecting on his initial struggle with his son’s diagnosis. Thankfully, with training and community support, he learned to embrace his role, despite encountering societal misunderstandings and personal doubts.
Support and Empowerment
Through the launch of The Action Foundation’s Disability-Inclusive Early Childhood Development (DIECD) project, resources and support have become more accessible. According to Africa Science News, this project aims to transform the support system for young children with disabilities in Kenya. “At least now, physiotherapy services are nearer, making my daughter’s mobility better,” says Christine Adisa, another devoted parent within the community.
Overcoming Challenges
The financial demands of raising a child with cerebral palsy pose significant challenges. Both Ongoro and Adisa emphasize the difficulty of obtaining necessary medication and therapy due to high costs. “We need more special schools,” stresses Adisa, highlighting the dire need for educational facilities to be more accommodating. Such challenges underscore the exigency of continuous support from organizations and the government.
A Vision for the Future
The DIECD initiative envisions a future where children with disabilities are no longer left on the fringes. By 2030, half of all children with disabilities should be enrolled in therapy programs, and more inclusive classrooms established across designated counties in Kenya. This project champions a transformative path, encapsulating the essence of a caring society that leaves no child behind.
With the resilient spirit of Mathare fathers, the project lays a hopeful foundation for social change, demonstrating that every child, regardless of ability, deserves an opportunity to thrive and succeed.
